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Contact the study team using the details below to take part. If there are no contact details below please ask your doctor in the first instance.
Leah
Jones
r.m.middleton@swansea.ac.uk
Mr
Rod
Middleton
r.m.middleton@swansea.ac.uk
More information about this study, what is involved and how to take part can be found on the study website.
Demyelinating diseases of the central nervous system
This information is provided directly by researchers, and we recognise that it isn't always easy to understand. We are working with researchers to improve the accessibility of this information. In some summaries, you may come across links to external websites. These websites will have more information to help you better understand the study.
The UK MS Register is a ‘real world’ research database designed to increase our understanding of living with MS in the UK. Patients diagnosed with Multiple Sclerosis (MS) according to the McDonald Classification, aged 18 or older, and residing in the UK are eligible to join. We are open to new NHS Sites. Upon consent, a minimum data set can be easily added to our case return form via eCRF for the project. Subsequently, sites provide ongoing longitudinal follow-up data during any patient attendance.. This can potentially be in the form of annual review letter.
Consent packs can be provided for in person consent, postal and e-Consent methodologies are also available. The Register team holds regular drop-in meetings and provides support for any issues raised by sites..
The second element of the study is the capture of Patient Reported Outcomes(PROs) directly from people with MS. This is via online portal and allows patients to get an overview of their disease and answer the six-monthly PROs.
With more NHS sites on board, we will be able gather more clinical data about MS in your area and together with all our other sites carry out research into treatments, lifestyle, epidemiology, cognition, burden of disease and many other essential areas vital to the NHS and people living with MS in the UK.’ Site PIs become part of the UKMS Register research group so there is the option of academic recognition for data set completion.
Start dates may differ between countries and research sites. The research team are responsible for keeping the information up-to-date.
The recruitment start and end dates are as follows:
Observational type: Cohort study;
You can take part if:
You may not be able to take part if:
Inability to give informed consent
Below are the locations for where you can take part in the trial. Please note that not all sites may be open.
Mr
Rod
Middleton
r.m.middleton@swansea.ac.uk
Leah
Jones
r.m.middleton@swansea.ac.uk
More information about this study, what is involved and how to take part can be found on the study website.
The study is sponsored by Swansea University and funded by MULTIPLE SCLEROSIS SOCIETY .
Your feedback is important to us. It will help us improve the quality of the study information on this site. Please answer both questions.
Read full details
for Trial ID: CPMS 10416
You can print or share the study information with your GP/healthcare provider or contact the research team directly.
